Help save children like Jeda
Earlier this year I was honoured to photograph Jeda, a six year old whangarei girl with DIPG cancer (Diffuse Intrinsic Pontine Glioma). It is an aggressive and inoperable form of brain tumour. With most children passing away within 18 months of diagnosis.
Less than one week ago an exclusive trail was announced to come to 16 hospitals worldwide, the BMI -1 inhibitor is said to be a massive step forwards for DIPG cancer treatment. And Jeda's mother Clare is petitioning to bring the trail to Starship.
https://secure.avaaz.org/…/Parents_Clinical_trial_at_star…/…
Please show your support by signing the online petition and sharing this post, so this beautiful girl is around to blow out the candles at her 7th birthday.
Update; the beautiful soul that is Jeda has passed, I would like to thank everyone who has supported her and her family in their mission to save those with DIPG. This is by far the hardest part of being a photographer.
